Agenda
10:30 Welcome
10:35 Patient Representative Presentation: Current Status and Concerns for Improving Patient Care
11:00 Neurocognitive Complications of Sickle Cell Disease Fenella Kirkham, Professor of Paediatric Neurology, Developmental Neurosciences Dept UCL GOS Institute of Child Health
11:45 NICE Approval and Managed Access Scheme for Crizanlizumab and Practical Aspects Presentation of SUSTAIN Trial Data and Discussion Around Practical Implementation Dr Martin Besser, Consultant Haematologist And Vivian Garcia General Haematology Nurse Specialist, Cambridge University Hospital
12:30 Voxelotor NPP Programme Presentation of HOPE Study Data and Practical Experience in CUH Patients Dr Martin Besser, Consultant Haematologist, Cambridge University Hospital
13:00 Lunch
13:30 Implementation of Automated Red Cell Exchange in Paediatric Albin Bendiola, Specialist Nurse, North Middlesex Hospital
14:00 Sickle Adult Patient Vaccination Audit Joanna Kucharczak, Cambridge University Hospital
14:15 Haemolytic Transfusion Reactions and Hyperhaemolysis Dr Karen Madgwick, Transfusion Pracitioner, North Middlesex Hospital
15:00 Stem Cell Transplantation and Cellular Therapy. Practical Aspects for the East Anglia Red Cell Network Dr Ben Carpenter, Consultant Haematologist, UCL
15:45 Close of Meeting and Next Steps