Charlotte Chapman-Hart from NWAFT will be talking about her experience as someone with two rare diseases
Agenda
- Rare Disease 101 – a whistle stop tour of the “facts and figures” and the Medics for Rare Disease mission
- Lived experience
- Translating lived experience into real change – Strengths, Weaknesses, Opportunities, Threats
- The RD journey at NWAFT so far
- Q&A session open to all